Something
wasn’t right. She was having nightmares and she
wasn’t seeing things normally. Her husband told
her she wasn’t acting like herself. She had been
having headaches but thought they were from job stress.
Nothing could have prepared Kelly
Stone for the news: An inoperable brain tumor on
her pituitary gland was
crushing her optic nerve. Within three months, as her
tumor grew from quarter-sized to the size of a golf
ball, she lost nearly all of her vision. Those months
were terrifying for Kelly. She couldn’t distinguish
the end of her driveway from the street, risking her
life with every trip to the mailbox. The interior of
her house felt unfamiliar and strange.
Kelly needed help. Aurora of Central
New York’s
Instructional Services for the Blind and Visually Impaired,
funded in part by United Way of Central New York, taught
her to use a cane and gave her back her mobility – both
in her own home and in the community. Aurora helped
improve the lighting in her home to maximize her eyesight
and taught her tricks to make life easier around the
house.
Today, three years after her diagnosis,
Kelly is doing great. Two experimental brain surgeries
using radiation
appear to have halted the growth of her tumor. She
suffers from daily migraines, but her medication helps
relieve the pain. She’s in her second level of
Braille, and she loves the language. She’s cut
and burned her hands many times in the kitchen, but
she never stopped preparing dinners. “My kids
have told me my dinners are better than before because
I take my time now,” she said.
Although Stone’s rare type of tumor has responded
well to treatments, doctors cannot predict whether
she will ever regain any of her lost eyesight. But
her exceptional philosophy of life shows how well she
has coped. “Sometimes you don’t need to
see to really see what’s going on in the world.
It goes beyond hearing, or a sense of people around
you. There’s a sense of the outer things: caring,
integrity, and what’s important in the world.
The sense of time. Your whole being changes when you
think you know what’s going on and something
is taken from you. Your sense of what is and what isn’t
important changes. I guess it’s a matter of life’s
worth. I appreciate my life more, both the big things
and the little things.”
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