Growing
up, Matthew Barkley didn’t have much of a perspective
on the difficulties faced by disabled people. Then, six
weeks into his senior year at SUNY Buffalo, he fell off
a roof, breaking his neck and injuring his spinal cord.
“All of a sudden, in one second, you’re faced
with all these issues,” he said. “It’s
almost like you have to start over in a new life.”
After four months in the hospital,
Matt moved back home with his parents-an adjustment
in itself at age 21. ARISE Child and Family Service,
a United Way agency, helped Matt and his parents redesign
their house for wheelchair accessibility. ARISE also
found a state grant to help pay for the expensive renovations.
Independent Living Skills, a United
Way-funded program administered by ARISE, connected
Matt with other disabled people who taught him how
to navigate the community in a wheelchair. ARISE also
placed Matt in a support group to help him deal with
depression after the overwhelming change in his life.
Today, Matt, although technically
a quadriplegic, has regained the strength in his arms
and hands to wheel himself in his chair and has enough
strength in his legs to walk short distances for exercise.
He works as an advocate for disabled individuals who
are facing specific struggles-such as discrimination
by employers-as well as the disabled population as
a whole.
Matt’s advocacy work has given him a new perspective
on his own life and how fortunate he was to have the support
of his family. “I’m a consumer of the system
and I can identify with the frustration and troubles people
face,” he said. “I’ve met others going
through similar situations to mine without that support.
A lot end up going into nursing homes or getting discharged
into apartments that aren’t wheelchair accessible.
I can’t imagine having to go through all that alone.”
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